--- title: "Myositis UK — charity 327791 accounts | CharityCompare" description: "Myositis UK (charity 327791): income £140k (2025). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/myositis-uk retrieved: 2026-10-08T04:19:04.096Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 327791 MU # Myositis UK Independent profile · Charity Commission for England and Wales data Myositis UK is a registered charity in England & Wales. Its register classifications include the advancement of health or saving of lives, disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.myositis.org.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=327791&subId=0) Work at Myositis UK? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=myositis-uk&type=claim&name=Myositis%20UK) to add your own description, logo and links. At a glance · official register ## What are the key facts about Myositis UK? Reported income · year ending 2025-03-31 £140,081 Reported spending · year ending 2025-03-31 £75,145 Registered charity number 327791 Status in source extract Registered Charity type Other Register contact address detail (not service area) Southampton Registered for Gift Aid (HMRC) Yes Website [www.myositis.org.uk](http://www.myositis.org.uk/) Quick answer Myositis UK (number 327791) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Myositis UK do? To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Myositis UK Answers Myositis UK gave in its annual return to the Charity Commission for the year ending 31 March 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are Myositis UK's highest-paid staff paid? Myositis UK's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records Myositis UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Myositis UK's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 26 April 1988 Previous names on the register Myositis Support Group; The Dermatomyositis and Polymyositis Support Group Where it says it operates Scotland · Northern Ireland ## Who it supports and how it works **Reported beneficiaries:** People With Disabilities; Other Charities Or Voluntary Bodies. **Reported activities:** Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Myositis UK registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Myositis UK yet? Our dataset does not yet contain the detailed filing history needed to score Myositis UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Myositis UK? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=myositis-uk&type=claim&name=Myositis%20UK) [Visit charity website](http://www.myositis.org.uk/) ## Frequently asked questions Is Myositis UK a legitimate charity? The register data used for this profile lists Myositis UK as a registered charity (number 327791) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Myositis UK's charity number? Myositis UK's charity number is 327791. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 327791? Search 327791 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Myositis UK do? To provide up to date information on all forms of MyositisTo help give those affected a better understanding of their illnessTo relieve the isolation felt by the individual when a rare illness is diagnosedTo guide those with the condition in the right direction of treatmentTo raise awareness of the conditionsTo raise funds to promote and fund research Does Myositis UK have reviews and complaints? CharityCompare does not host public user reviews for Myositis UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Myositis UK? Myositis UK's website listed in our register data is http://www.myositis.org.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is Myositis UK's chief executive paid? The Charity Commission register does not name individual salaries. Myositis UK's annual return for the year ending 31 March 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to Myositis UK? The register records Myositis UK as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Myositis UK's trustees paid? Myositis UK's annual return for the year ending 31 March 2025 reports that no trustee received remuneration or other benefits from the charity. What was Myositis UK previously called? The register lists these previous names for Myositis UK: Myositis Support Group; The Dermatomyositis and Polymyositis Support Group. When was Myositis UK registered as a charity? Myositis UK was entered on the register on 26 April 1988. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=327791&subId=0).