--- title: "Kleefstra Syndrome UK — charity 1208059 | CharityCompare" description: "Kleefstra Syndrome UK (charity 1208059): income £15,339 (2025). Check registration, activities, accounts and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/kleefstra-syndrome-uk retrieved: 2026-10-07T11:29:54.195Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1208059CIO KS # Kleefstra Syndrome UK Independent profile · Charity Commission for England and Wales data Kleefstra Syndrome UK is a registered charity in England & Wales. Its register classifications include disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.kleefstrasyndrome.org/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1208059&subId=0) Work at Kleefstra Syndrome UK? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=kleefstra-syndrome-uk&type=claim&name=Kleefstra%20Syndrome%20UK) to add your own description, logo and links. At a glance · official register ## What are the key facts about Kleefstra Syndrome UK? Reported income · year ending 2025-12-31 £15,339 Reported spending · year ending 2025-12-31 £2,012 Registered charity number 1208059 Status in source extract Registered Charity type CIO Register contact address detail (not service area) waterside business park Website [www.kleefstrasyndrome.org](http://www.kleefstrasyndrome.org/) Quick answer Kleefstra Syndrome UK (number 1208059) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Kleefstra Syndrome UK do? The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Kleefstra Syndrome UK Answers Kleefstra Syndrome UK gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### Can I claim Gift Aid, and are the trustees paid? Kleefstra Syndrome UK's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 30 April 2024 Also known as Kleefstrasyndrome.org Where it says it operates Throughout England and Wales ## Who it supports and how it works **Reported beneficiaries:** People With Disabilities. **Reported activities:** Provides Advocacy/advice/information. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Kleefstra Syndrome UK registered for? Disability ## Why is there no Clarity Score for Kleefstra Syndrome UK yet? Our dataset does not yet contain the detailed filing history needed to score Kleefstra Syndrome UK. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Kleefstra Syndrome UK? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=kleefstra-syndrome-uk&type=claim&name=Kleefstra%20Syndrome%20UK) [Visit charity website](http://www.kleefstrasyndrome.org/) ## Frequently asked questions Is Kleefstra Syndrome UK a legitimate charity? The register data used for this profile lists Kleefstra Syndrome UK as a registered charity (number 1208059) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Kleefstra Syndrome UK's charity number? Kleefstra Syndrome UK's charity number is 1208059. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1208059? Search 1208059 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Kleefstra Syndrome UK do? The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome Does Kleefstra Syndrome UK have reviews and complaints? CharityCompare does not host public user reviews for Kleefstra Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Kleefstra Syndrome UK? Kleefstra Syndrome UK's website listed in our register data is http://www.kleefstrasyndrome.org. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Are Kleefstra Syndrome UK's trustees paid? Kleefstra Syndrome UK's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. When was Kleefstra Syndrome UK registered as a charity? Kleefstra Syndrome UK was entered on the register on 30 April 2024. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1208059&subId=0).