--- title: "International Prader-Willi Syndrome… — charity 1182873" description: "International Prader-Willi Syndrome… (charity 1182873). Check registration, activities, accounts and official sources. Independent UK charity profile." source: https://www.charitycompare.org.uk/charity/international-prader-willi-syndrome-organisation retrieved: 2026-09-21T04:25:24.161Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer International Prader-Willi Syndrome Organisation is listed as a registered charity (number 1182873) in the Charity Commission for England and Wales data used for this profile. Verify its current status and contact details on the live register before donating. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £206,698 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score can be added when it enters our detailed scoring dataset. ## What are the key facts about International Prader-Willi Syndrome Organisation? Registered charity number 1182873 Status in source extract Registered Charity type CIO Register contact locality (not service coverage) Salisbury House Latest income (year ending 2025-12-31) £206,698 Website [www.ipwso.org](https://www.ipwso.org/) ## What does International Prader-Willi Syndrome Organisation do? IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. ## Who it supports and how it works **Reported beneficiaries:** Other Defined Groups. **Reported activities:** Makes Grants To Individuals; Makes Grants To Organisations; Provides Advocacy/advice/information; Sponsors Or Undertakes Research; Acts As An Umbrella Or Resource Body. Classifications supplied to the register; extract 2026-09-08. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is International Prader-Willi Syndrome Organisation registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for International Prader-Willi Syndrome Organisation yet? The Clarity Score is computed from full financial filing history. International Prader-Willi Syndrome Organisation is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. A rating can be added when the charity enters our scoring dataset with enough filing data. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to International Prader-Willi Syndrome Organisation? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Provided by the charity Supporting public source ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=international-prader-willi-syndrome-organisation&type=claim) [Visit charity website](https://www.ipwso.org/) ## Frequently asked questions Is International Prader-Willi Syndrome Organisation a legitimate charity? The register data used for this profile lists International Prader-Willi Syndrome Organisation as a registered charity (number 1182873) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is International Prader-Willi Syndrome Organisation's charity number? International Prader-Willi Syndrome Organisation's charity number is 1182873. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1182873? Search 1182873 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does International Prader-Willi Syndrome Organisation do? IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. Does International Prader-Willi Syndrome Organisation have reviews and complaints? CharityCompare does not host public user reviews for International Prader-Willi Syndrome Organisation. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to International Prader-Willi Syndrome Organisation? International Prader-Willi Syndrome Organisation's website listed in our register data is https://www.ipwso.org/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Source: Charity Commission for England and Wales register extract dated 2026-09-08, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1182873&subId=0).