--- title: "Foundation Exploring Skeletal Dysplasias… — charity 1215632" description: "Foundation Exploring Skeletal Dysplasias… (charity 1215632). Check registration, activities, accounts and official sources. Independent UK charity profile." source: https://www.charitycompare.org.uk/charity/foundation-exploring-skeletal-dysplasias-together-fest retrieved: 2026-09-22T04:18:51.612Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Foundation Exploring Skeletal Dysplasias Together (Fest) is listed as a registered charity (number 1215632) in the Charity Commission for England and Wales data used for this profile. Verify its current status and contact details on the live register before donating. It is registered for: disability. CharityCompare shows its official register record below; a Clarity Score can be added when it enters our detailed scoring dataset. ## What are the key facts about Foundation Exploring Skeletal Dysplasias Together (Fest)? Registered charity number 1215632 Status in source extract Registered Charity type CIO Register contact locality (not service coverage) Shrewsbury Website [www.myskeletaldysplasia.org.uk](https://www.myskeletaldysplasia.org.uk/) ## What does Foundation Exploring Skeletal Dysplasias Together (Fest) do? Operating throughout England and Wales and dedicated to improving the lives of people with skeletal dysplasia and their families. Our work spans advocacy, education, research, community support, and international collaboration. We exist to bridge gaps in policy, practice, and lived experience ## Who it supports and how it works **Reported beneficiaries:** People With Disabilities. **Reported activities:** Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-09-08. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Foundation Exploring Skeletal Dysplasias Together (Fest) registered for? Disability ## Why is there no Clarity Score for Foundation Exploring Skeletal Dysplasias Together (Fest) yet? The Clarity Score is computed from full financial filing history. Foundation Exploring Skeletal Dysplasias Together (Fest) is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. A rating can be added when the charity enters our scoring dataset with enough filing data. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Foundation Exploring Skeletal Dysplasias Together (Fest)? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Provided by the charity Supporting public source ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=foundation-exploring-skeletal-dysplasias-together-fest&type=claim) [Visit charity website](https://www.myskeletaldysplasia.org.uk/) ## Frequently asked questions Is Foundation Exploring Skeletal Dysplasias Together (Fest) a legitimate charity? The register data used for this profile lists Foundation Exploring Skeletal Dysplasias Together (Fest) as a registered charity (number 1215632) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Foundation Exploring Skeletal Dysplasias Together (Fest)'s charity number? Foundation Exploring Skeletal Dysplasias Together (Fest)'s charity number is 1215632. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1215632? Search 1215632 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Foundation Exploring Skeletal Dysplasias Together (Fest) do? Operating throughout England and Wales and dedicated to improving the lives of people with skeletal dysplasia and their families. Our work spans advocacy, education, research, community support, and international collaboration. We exist to bridge gaps in policy, practice, and lived experience Does Foundation Exploring Skeletal Dysplasias Together (Fest) have reviews and complaints? CharityCompare does not host public user reviews for Foundation Exploring Skeletal Dysplasias Together (Fest). This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Foundation Exploring Skeletal Dysplasias Together (Fest)? Foundation Exploring Skeletal Dysplasias Together (Fest)'s website listed in our register data is https://www.myskeletaldysplasia.org.uk/. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Source: Charity Commission for England and Wales register extract dated 2026-09-08, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1215632&subId=0).