--- title: "FOP Friends — charity SC046950" description: "FOP Friends (charity SC046950). Check registration, activities, accounts and official sources. Independent UK charity profile." source: https://www.charitycompare.org.uk/charity/fop-friends-2 retrieved: 2026-09-23T10:47:40.503Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer FOP Friends is listed as a registered charity (number SC046950) in the Office of the Scottish Charity Regulator (OSCR) data used for this profile. Verify its current status and contact details on the live register before donating. It is registered for: the advancement of education; the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage. Its latest reported income was £142,840 (year ending 2024-12-31). CharityCompare shows its official register record below; a Clarity Score can be added when it enters our detailed scoring dataset. At a glance · official register ## What are the key facts about FOP Friends? Registered charity number SC046950 Status in source extract Registered Charity type Trust (founding document is a deed of trust) (other than educational endowment) Register contact address detail (not service area) Outwith Scotland Latest income (year ending 2024-12-31) £142,840 Website [www.fopfriends.com](http://www.fopfriends.com/) ## What does FOP Friends do? The objects of the charity ('the objects') are: The relief of distress and sickness for those affected by Fibrodysplasia Ossificans Progressiva (FOP) a tragic, degenerative and debilitating condition and to improve the lives of sufferers and their families. To raise public awareness and understanding of Fibrodysplasia Ossificans Progressiva (FOP) and to promote education and research into the study and cure of FOP and related conditions. To support charities and organisations undertaking charitable activities in both the UK and abroad who fund research, provide help, support, care and trea… ## What causes is FOP Friends registered for? the advancement of educationthe relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage ## Why is there no Clarity Score for FOP Friends yet? The Clarity Score is computed from full financial filing history. FOP Friends is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. A rating can be added when the charity enters our scoring dataset with enough filing data. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to FOP Friends? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional partner plans add a logo, photos and featured visibility; claiming itself is always free and never changes a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=fop-friends-2&type=claim) [Visit charity website](http://www.fopfriends.com/) ## Frequently asked questions Is FOP Friends a legitimate charity? The register data used for this profile lists FOP Friends as a registered charity (number SC046950) with the Office of the Scottish Charity Regulator (OSCR). Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is FOP Friends's charity number? FOP Friends's charity number is SC046950. Check that number on the OSCR register or this CharityCompare profile before you donate. How do I check charity number SC046950? Search SC046950 on the Office of the Scottish Charity Regulator (OSCR) register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does FOP Friends do? The objects of the charity ('the objects') are: The relief of distress and sickness for those affected by Fibrodysplasia Ossificans Progressiva (FOP) a tragic, degenerative and debilitating condition and to improve the lives of sufferers and their families. To raise public awareness and understanding of Fibrodysplasia Ossificans Progressiva (FOP) and to promote education and research into the study and cure of FOP and related conditions. To support charities and organisations undertaking charitable activities in both the UK and abroad who fund research, provide help, support, care and trea… Does FOP Friends have reviews and complaints? CharityCompare does not host public user reviews for FOP Friends. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Office of the Scottish Charity Regulator (OSCR) or the Fundraising Regulator as appropriate. How can I donate to FOP Friends? FOP Friends's website listed in our register data is http://www.fopfriends.com. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. Source: Office of the Scottish Charity Regulator (OSCR) register extract dated 2026-09-23, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://www.oscr.org.uk/about-charities/search-the-register/charity-details?number=SC046950).