--- title: "Epilepsy Research Institute UK rating | CharityCompare" description: "Is Epilepsy Research Institute UK a legitimate UK charity? Clarity Score 75/100. Accounts 2025: income £1.7m · 93% on charitable activities. Reg 1100394." source: https://www.charitycompare.org.uk/charity/epilepsy-research-institute-uk retrieved: 2026-08-18T02:07:11.482Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer ## Is Epilepsy Research Institute UK a good charity? Epilepsy Research Institute UK scores 75/100 (4 stars, Good) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2025 (£1.7m total income, 93% of spending on charitable activities). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown. London · UK-wide · SE1 3GN | Reg [1100394](https://www.charitycompare.org.uk/charity/epilepsy-research-institute-uk) | Registered charity | [Official website](https://www.epilepsy-institute.org.uk/) | [Charity Commission register](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1100394) Donate ## How can you give to EPILEPSY RESEARCH INSTITUTE UK? You leave CharityCompare to complete a donation on the official EPILEPSY RESEARCH INSTITUTE UK form. We do not process payments or take commission. Opens their official online donation form. [Donate](https://www.epilepsy-institute.org.uk/?utm_source=charitycompare&utm_medium=referral&utm_campaign=donate&utm_content=1100394) ## What does Epilepsy Research Institute UK do? Epilepsy Research Institute UK is a registered charity (no. 1100394) working in medical research across the United Kingdom. Its latest Charity Commission filing directs 93% of spending to charitable activities, holding roughly 13 months of reserves, though its recent accounts were filed late. Reported income has been growing (≈9% a year). CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes. Summarised from public filings — Epilepsy Research Institute UK hasn't added its own description yet. [Work here? Add it free →](https://www.charitycompare.org.uk/claim?charity=epilepsy-research-institute-uk) **In short:** EPILEPSY RESEARCH INSTITUTE UK scores 75 out of 100 (4 stars). 93% average program spend (3-year average). Review the pillar breakdown below. ## What is Epilepsy Research Institute UK? Epilepsy Research Institute UK has a Clarity Score of 75 out of 100 on CharityCompare (4 stars, Good). Charity Commission registration number 1100394. Status: Registered. Primary cause area: Medical research. Latest accounts year 2025: total income £1.7m, with 93% of expenditure on charitable activities. Accounts filing: late. Reserves: approximately 13 months of operating costs. 2 filing concern(s) noted on this profile. Scores are independent and based on official filings — not a donation recommendation. Data from [Charity Commission register](https://register-of-charities.charitycommission.gov.uk/), last updated 17 July 2026. Overall score 75/100 4★ · Good Cause spend 93% 3-yr avg · charitable activities Accountability 75/100 Finance beacon Income £1.7m Latest year 2025 Reserves 13 mo Months of running costs Accounts filing Late Check register £14.4 raised per £1 fundraising (3-yr avg) · 11% overhead · Website on register · Confidence: medium ## How does EPILEPSY RESEARCH INSTITUTE UK compare? Clarity Score percentile against similar UK charities — the share of peers EPILEPSY RESEARCH INSTITUTE UK scores higher than. Income band (£1m–£5m)38thpercentile **Scores higher than 38% of 2,776 charities in its income band** · 75/100 vs 78 peer average (marker). Medical research charities41stpercentile **Scores higher than 41% of 22 charities in this cause** · 75/100 vs 76 peer average (marker). ## How reliable is Epilepsy Research Institute UK's data? Source Charity Commission (England & Wales) Accounts year 2025 Filing date 24 June 2026 Profile reviewed 17 July 2026 Medium confidence — some data missing or late Scores reflect the latest annual accounts on the register. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact. Contains public sector information licensed under the Open Government Licence v3.0. Sources: [Charity Commission for England and Wales](https://register-of-charities.charitycommission.gov.uk/), [Office of the Scottish Charity Regulator](https://www.oscr.org.uk/) and [Charity Commission for Northern Ireland](https://www.charitycommissionni.org.uk/). [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). ## What is Epilepsy Research Institute UK's Beacon report? Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report. ### Accountability & Transparency Baseline trust from filing discipline, board oversight, and declared governance policies. 75/100 | Metric | Score | Value | | --- | --- | --- | | Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 33% | 5/15 pts | | Trustee oversight Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three). | 100% | 12 trustees · 15/15 pts | | Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts | ### Financial Health Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts. 50/100 | Metric | Score | Value | | --- | --- | --- | | Reserves (months of cash) 3–24 months = full marks, tapering on both sides · 0 months or 4+ years (hoarding) = 0 pts. | 100% | 13 months · 15/15 pts | | Income stability / growth +20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between. | 0% | 0/10 pts · 3-year average | | Liabilities to assets 0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt. | 0% | 67% · 0/5 pts | ### Financial Efficiency How efficiently funds reach the cause — program spend and fundraising cost ratios. 100/100 | Metric | Score | Value | | --- | --- | --- | | Program expense ratio 90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below. | 100% | 93% · 10/10 pts (3-year average) | | Fundraising efficiency ≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income). | 100% | 9p per £1 income · 10/10 pts (3-year average) | ### Community Support Grassroots backing from Charity Commission workforce data — volunteers vs paid staff. 100/100 | Metric | Score | Value | | --- | --- | --- | | Volunteer-to-staff ratio Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between. | 100% | 42 volunteers / 14 staff · 10/10 pts | [How we calculate beacon scores →](https://www.charitycompare.org.uk/methodology) ## What is Epilepsy Research Institute UK's Clarity Score? 75/100 total · Good · 4 of 5 stars Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings. 75/100 Accountability & Transparency 50/100 Financial Health 100/100 Financial Efficiency 100/100 Community Support ### Accountability & Transparency Baseline trust from filing discipline, board oversight, and declared governance policies. 75/100 Filing history (5 years)5/15 pts Trustee oversight12 trustees · 15/15 pts Declared policies10/10 pts ### Financial Health Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts. 50/100 Reserves (months of cash)13 months · 15/15 pts Income stability / growth0/10 pts · 3-year average Liabilities to assets67% · 0/5 pts ### Financial Efficiency How efficiently funds reach the cause — program spend and fundraising cost ratios. 100/100 Program expense ratio93% · 10/10 pts (3-year average) Fundraising efficiency9p per £1 income · 10/10 pts (3-year average) ### Community Support Grassroots backing from Charity Commission workforce data — volunteers vs paid staff. 100/100 Volunteer-to-staff ratio42 volunteers / 14 staff · 10/10 pts ## How much does Epilepsy Research Institute UK raise and spend? Latest filed year 2025 · Source: Charity Commission filings | Category | Amount | % of spend | | --- | --- | --- | | Total income | £1.7m | — | | Total expenditure | £2.9m | — | | Charitable activities | £2.6m | 91% | | Fundraising | £269k | 9% | | Governance & admin | £128k | 4% | 91%On charitable activities ## Where does the money go? Latest accounts (2025) · £2.9m spent - Charitable activities91% · £2.6m - Fundraising9% · £269k - Governance4% · £128k ## What trust indicators does Epilepsy Research Institute UK have? Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported. - — Accounts filed on time Filing status: late - ✓ Trustee board size (3–12) 12 trustees on the Charity Commission register - ✓ Workforce on register 14 employees · 42 volunteers (3:1 volunteer-to-staff) Fundraising Regulator Status not yet checked Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice. [Check Fundraising Regulator →](https://www.fundraisingregulator.org.uk/members/) Official register Reg 1100394 Full trustee list, accounts, and regulatory history on the Charity Commission. [View on Charity Commission →](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1100394) ### Trustees & officers - Professor Matthew Walker since 2011 - Professor Mark Richardson since 2013 - Professor Michael Alan Cousin since 2020 - Professor Nicholas John Lench since 2021 - Professor Martin John Elliott since 2022 - Professor Anthony Marson since 2023 - Rebekah Smith since 2023 - Lesslie Anne Young since 2023 - Juliet Kate Solomon since 2023 - Simon Lodge since 2024 - Anna Louise Prideaux since 2025 - Jane Elizabeth Cullinan Beaven since 2025 100 How we score charities +The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically. [Full methodology →](https://www.charitycompare.org.uk/methodology) Accountability & Transparency Scored from filings 40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10). Financial Health Scored from filings 30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises). Financial Efficiency Scored from filings 20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below). Community Support Scored from filings 10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio. Overall score Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated. ## How have Epilepsy Research Institute UK's finances changed over five years? - Income - Spending - Cause spend Values in £ thousands · Cause spend plotted only when the filing discloses a split · Source: Charity Commission accounts ## What are the key facts about Epilepsy Research Institute UK? Overall score 75/100 (4★) Income £1.7m Cause spend 93% of expenditure Reg number 1100394 Scope UK-wide Reserves 13 months Trustees 12 Accounts year 2025 Filing late ## How does EPILEPSY RESEARCH INSTITUTE UK compare, and where else can you look? [Compare EPILEPSY RESEARCH INSTITUTE UK with others](https://www.charitycompare.org.uk/compare-charities?ids=epilepsy-research-institute-uk) [More medical research charities](https://www.charitycompare.org.uk/browse/medical-research) [How we score charities](https://www.charitycompare.org.uk/methodology) ### Where EPILEPSY RESEARCH INSTITUTE UK sits The causes this charity is classified under, and other charities working nearby. - [medical research charities](https://www.charitycompare.org.uk/browse/medical-research) - [health charities](https://www.charitycompare.org.uk/browse/health) - [children charities](https://www.charitycompare.org.uk/browse/children) - [elderly charities](https://www.charitycompare.org.uk/browse/elderly) - [Charities in London](https://www.charitycompare.org.uk/cities/london) - [medical research charities in London](https://www.charitycompare.org.uk/browse/medical-research/london) ### Similar medical research charities Top-rated peers by CharityCompare score - [SIGHT RESEARCH UK](https://www.charitycompare.org.uk/charity/sight-research-uk) 94/100 · £871k - [HEALTH DATA RESEARCH UK](https://www.charitycompare.org.uk/charity/health-data-research-uk) 87/100 · £15m - [HEART RESEARCH UK](https://www.charitycompare.org.uk/charity/heart-research-uk) 87/100 · £3.4m - [HOMEOPATHY RESEARCH INSTITUTE](https://www.charitycompare.org.uk/charity/homeopathy-research-institute) 87/100 · £1.6m ## How can you share Epilepsy Research Institute UK's rating? 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Free to use — a lightweight HTML badge or an embeddable score widget, each linking back to this independent profile and our [methodology](https://www.charitycompare.org.uk/methodology). BadgeScore widget [♥ CharityCompare Clarity Score 75/100 ★★★★★](https://www.charitycompare.org.uk/charity/epilepsy-research-institute-uk) Lightweight HTML badge (no iframe) — paste anywhere ♥ CharityCompare Clarity Score 75/100 ★★★★★ Copy code ## What red flags does Epilepsy Research Institute UK have? ## Frequently asked questions Common questions about Epilepsy Research Institute UK's rating, finances, and Charity Commission status. Is Epilepsy Research Institute UK a good charity? + Epilepsy Research Institute UK scores 75 out of 100 (4 stars — Good) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 93% of its spending goes to charitable activities and its accounts are late. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate. Is Epilepsy Research Institute UK a legitimate charity? + Yes — Epilepsy Research Institute UK is a legitimate registered charity (charity number 1100394). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1100394. Registration proves status; Clarity Score then summarises filing transparency on paper, not programme impact. What is Epilepsy Research Institute UK's charity number? + Epilepsy Research Institute UK's charity number is 1100394. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals. What is Epilepsy Research Institute UK's charity rating? + Epilepsy Research Institute UK scores 75 out of 100 on CharityCompare (4 stars — Good). The Clarity Score V1 sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking. Does Epilepsy Research Institute UK have reviews and complaints? + CharityCompare does not host public user reviews for Epilepsy Research Institute UK. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts (2 filing concern(s) noted on this profile). For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate. How much of my donation reaches Epilepsy Research Institute UK? + According to its 2025 regulator filing, 93% of Epilepsy Research Institute UK's total spending went to charitable activities (3-yr avg across disclosed years). That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift. What are Epilepsy Research Institute UK's overheads? + According to its 2025 regulator filing, fundraising costs were about 7% of total expenditure and combined overheads (fundraising plus governance) were about 11% of total expenditure at Epilepsy Research Institute UK. The filings CharityCompare uses do not publish CEO or senior-staff pay, so we cannot say what Epilepsy Research Institute UK's chief executive is paid — where disclosure rules apply, senior pay appears in the trustees' annual report on the Charity Commission register. How much income does Epilepsy Research Institute UK receive? + Epilepsy Research Institute UK reported £1.7m total income in its 2025 accounts, based on UK regulator filings. Five-year trend: growing. Are Epilepsy Research Institute UK's accounts up to date? + Filing status: late (last filing 2026-06-24). CharityCompare flags late or missing accounts separately from the financial score. Where is Epilepsy Research Institute UK based? + Epilepsy Research Institute UK is listed at London · UK-wide · SE1 3GN and operates UK-wide, focused on medical research. How does CharityCompare score Epilepsy Research Institute UK? + We calculate a Clarity Score of 0–100 from four pillars in Epilepsy Research Institute UK's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought. How often is this page updated? + This profile was last updated on 17 July 2026 from the latest UK regulator data available to CharityCompare, and Epilepsy Research Institute UK's most recent accounts cover 2025. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.