--- title: "Ectodermal Dysplasia Society — charity 1089135 | CharityCompare" description: "Ectodermal Dysplasia Society (charity 1089135): income £107k (2025). Check registration, accounts, Gift Aid and official sources on an independent UK profile." source: https://www.charitycompare.org.uk/charity/ectodermal-dysplasia-society retrieved: 2026-10-06T19:54:08.882Z date_note: "Retrieval time is not the filing, register-extract or editorial-review date; cite those dates from the content." license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Registered charity · No. 1089135 ED # Ectodermal Dysplasia Society Independent profile · Charity Commission for England and Wales data Ectodermal Dysplasia Society is a registered charity in England & Wales. Its register classifications include education/training, the advancement of health or saving of lives, disability. Register extract 2026-10-04 · Not yet rated [Visit charity website](http://www.edsociety.co.uk/) [Check official registration](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1089135&subId=0) Work at Ectodermal Dysplasia Society? [Claim this profile free](https://www.charitycompare.org.uk/claim?charity=ectodermal-dysplasia-society&type=claim&name=Ectodermal%20Dysplasia%20Society) to add your own description, logo and links. At a glance · official register ## What are the key facts about Ectodermal Dysplasia Society? Reported income · year ending 2025-12-31 £107,407 Reported spending · year ending 2025-12-31 £115,098 Registered charity number 1089135 Status in source extract Registered Charity type Other Register contact address detail (not service area) Leckhampton Registered for Gift Aid (HMRC) Yes Website [www.edsociety.co.uk](http://www.edsociety.co.uk/) Quick answer Ectodermal Dysplasia Society (number 1089135) is listed as registered in the Charity Commission snapshot used here. Check the live register for its current position. Registration does not authenticate a particular fundraising appeal or establish the impact of a donation. ## What does Ectodermal Dysplasia Society do? The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition. Activities reported on the official register · extract 2026-10-04. From the annual return ## Pay, income, Gift Aid and registration details for Ectodermal Dysplasia Society Answers Ectodermal Dysplasia Society gave in its annual return to the Charity Commission for the year ending 31 December 2025, plus its register entry. A blank answer in the return is shown as not reported, never as “no”. ### How much are Ectodermal Dysplasia Society's highest-paid staff paid? Ectodermal Dysplasia Society's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. The register reports headcounts in salary bands, not names. Individual pay is disclosed in the trustees' annual report. ### Can I claim Gift Aid, and are the trustees paid? The register records Ectodermal Dysplasia Society as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. [Work out your Gift Aid](https://www.charitycompare.org.uk/gift-aid-calculator) Ectodermal Dysplasia Society's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. ### Registration details Registered as a charity 31 October 2001 Also known as Eds Where it says it operates Throughout England and Wales ## Who it supports and how it works **Reported beneficiaries:** Children/young People; Elderly/old People; People With Disabilities; The General Public/mankind. **Reported activities:** Provides Services; Provides Advocacy/advice/information; Sponsors Or Undertakes Research. Classifications supplied to the register; extract 2026-10-04. These broad categories do not establish eligibility or current capacity. Use the official contact details to ask about access, referrals and service area. ## What causes is Ectodermal Dysplasia Society registered for? Education/trainingThe Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Ectodermal Dysplasia Society yet? Our dataset does not yet contain the detailed filing history needed to score Ectodermal Dysplasia Society. An unrated profile is a gap in our assessment, not a negative judgement about the charity. The register facts and available annual-return disclosures above remain useful. Payment never influences a rating. [How scoring works](https://www.charitycompare.org.uk/methodology) ## What should you check before donating to Ectodermal Dysplasia Society? - Match the registered name and number to the appeal. A real charity number can be copied by someone impersonating the organisation. - Open the current register entry to check status, contact details and available accounts. This profile reflects a dated extract. - Read the charity’s annual report for its work and results. An unrated profile means we lack a full assessment; it is not a negative rating. [How to read charity accounts](https://www.charitycompare.org.uk/guides/how-to-read-accounts) · [Explore rated charities](https://www.charitycompare.org.uk/charity-directory) ## Is this your charity? Claim this profile free to submit your description and an optional logo for review, correct details, or respond publicly. Approved claims show attribution and claimed status. Optional paid plans add enhanced media, reporting and labelled featured visibility by tier; they never change a score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=ectodermal-dysplasia-society&type=claim&name=Ectodermal%20Dysplasia%20Society) [Visit charity website](http://www.edsociety.co.uk/) ## Frequently asked questions Is Ectodermal Dysplasia Society a legitimate charity? The register data used for this profile lists Ectodermal Dysplasia Society as a registered charity (number 1089135) with the Charity Commission for England and Wales. Check the current register entry. A real charity number does not verify a fundraiser or appeal, and registration is not an impact rating. What is Ectodermal Dysplasia Society's charity number? Ectodermal Dysplasia Society's charity number is 1089135. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1089135? Search 1089135 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Ectodermal Dysplasia Society do? The relief of sickness and the protection and preservation of the health of persons affected by Ectodermal Dysplasia (ED) and any related condition. Does Ectodermal Dysplasia Society have reviews and complaints? CharityCompare does not host public user reviews for Ectodermal Dysplasia Society. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Ectodermal Dysplasia Society? Ectodermal Dysplasia Society's website listed in our register data is http://www.edsociety.co.uk. Verify it against the current register before donating. CharityCompare does not process donations or take a commission; the charity's payment provider may charge fees. How much is Ectodermal Dysplasia Society's chief executive paid? The Charity Commission register does not name individual salaries. Ectodermal Dysplasia Society's annual return for the year ending 31 December 2025 reports no employees paid more than £60,000. Charities normally disclose the chief executive's pay, or the pay of their highest-paid staff, in the remuneration note of the trustees' annual report and accounts. Can I claim Gift Aid on a donation to Ectodermal Dysplasia Society? The register records Ectodermal Dysplasia Society as registered with HMRC for Gift Aid, so a UK taxpayer can usually add 25p to every £1 they give by making a Gift Aid declaration. Are Ectodermal Dysplasia Society's trustees paid? Ectodermal Dysplasia Society's annual return for the year ending 31 December 2025 reports that no trustee received remuneration or other benefits from the charity. When was Ectodermal Dysplasia Society registered as a charity? Ectodermal Dysplasia Society was entered on the register on 31 October 2001. Source: Charity Commission for England and Wales register extract dated 2026-10-04, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/charity-details/?regId=1089135&subId=0).