--- title: "CdLS Foundation UK & Ireland — check charity number 1054033 | CharityCompare" description: "Is CdLS Foundation UK & Ireland a legitimate UK charity? Check charity number 1054033. The Advancement Of Health Or Saving Of Lives charity based in PO Box 8368. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/cdls-foundation-uk-ireland retrieved: 2026-08-18T13:16:28.727Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer CdLS Foundation UK & Ireland is a registered charity (number 1054033) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: the advancement of health or saving of lives; disability. Its latest reported income was £53,629 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about CdLS Foundation UK & Ireland? Registered charity number 1054033 Status Registered (active) Charity type Other Location PO Box 8368 Latest income (year ending 2025-12-31) £53,629 Website [www.cdls.org.uk](http://www.cdls.org.uk/) ## What does CdLS Foundation UK & Ireland do? Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research. ## What causes is CdLS Foundation UK & Ireland registered for? The Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for CdLS Foundation UK & Ireland yet? The Clarity Score is computed from full financial filing history. CdLS Foundation UK & Ireland is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=cdls-foundation-uk-ireland&type=claim) [Visit charity website](http://www.cdls.org.uk/) ## Frequently asked questions Is CdLS Foundation UK & Ireland a legitimate charity? Yes. CdLS Foundation UK & Ireland is a legitimate registered charity (charity number 1054033) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is CdLS Foundation UK & Ireland's charity number? CdLS Foundation UK & Ireland's charity number is 1054033. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1054033? Search 1054033 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does CdLS Foundation UK & Ireland do? Providing information about this rare syndrome to families and professionals. Links with other CDLS support groups around the world to give information in different languages, meetings & research. Does CdLS Foundation UK & Ireland have reviews and complaints? CharityCompare does not host public user reviews for CdLS Foundation UK & Ireland. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to CdLS Foundation UK & Ireland? CdLS Foundation UK & Ireland's website is http://www.cdls.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1054033).