--- title: "Cambridge Rare Disease Network — check charity number 1166365 | CharityCompare" description: "Is Cambridge Rare Disease Network a legitimate UK charity? Check charity number 1166365. Education/training charity based in 5 Station Court. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/cambridge-rare-disease-network retrieved: 2026-08-18T03:20:16.239Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Cambridge Rare Disease Network is a registered charity (number 1166365) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: education/training; the advancement of health or saving of lives; disability. Its latest reported income was £181,873 (year ending 2024-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about Cambridge Rare Disease Network? Registered charity number 1166365 Status Registered (active) Charity type CIO Location 5 Station Court Latest income (year ending 2024-12-31) £181,873 Website [www.camraredisease.org](http://www.camraredisease.org/) ## What does Cambridge Rare Disease Network do? CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research. ## What causes is Cambridge Rare Disease Network registered for? Education/trainingThe Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Cambridge Rare Disease Network yet? The Clarity Score is computed from full financial filing history. Cambridge Rare Disease Network is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=cambridge-rare-disease-network&type=claim) [Visit charity website](http://www.camraredisease.org/) ## Frequently asked questions Is Cambridge Rare Disease Network a legitimate charity? Yes. Cambridge Rare Disease Network is a legitimate registered charity (charity number 1166365) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is Cambridge Rare Disease Network's charity number? Cambridge Rare Disease Network's charity number is 1166365. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1166365? Search 1166365 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Cambridge Rare Disease Network do? CamRARE makes life easier for those living with rare conditions. Regionally we support affected families through community activities. We connect, educate and collaborate with stakeholders and the public on rare disease research, diagnosis, treatments and care through our platforms RAREsummit, RAREfest, Companies Forum and RDRN. We undertake, support and connect patients with research. Does Cambridge Rare Disease Network have reviews and complaints? CharityCompare does not host public user reviews for Cambridge Rare Disease Network. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Cambridge Rare Disease Network? Cambridge Rare Disease Network's website is http://www.camraredisease.org — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1166365).