--- title: "Barth Syndrome UK — check charity number 1181830 | CharityCompare" description: "Is Barth Syndrome UK a legitimate UK charity? Check charity number 1181830. General Charitable Purposes charity based in Romsey. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/barth-syndrome-uk retrieved: 2026-08-18T07:31:51.474Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Barth Syndrome UK is a registered charity (number 1181830) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; the advancement of health or saving of lives. Its latest reported income was £58,080 (year ending 2025-12-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about Barth Syndrome UK? Registered charity number 1181830 Status Registered (active) Charity type CIO Location Romsey Latest income (year ending 2025-12-31) £58,080 Website [www.barthsyndrome.org.uk](http://www.barthsyndrome.org.uk/) ## What does Barth Syndrome UK do? Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure. ## What causes is Barth Syndrome UK registered for? General Charitable PurposesThe Advancement Of Health Or Saving Of Lives ## Why is there no Clarity Score for Barth Syndrome UK yet? The Clarity Score is computed from full financial filing history. Barth Syndrome UK is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=barth-syndrome-uk&type=claim) [Visit charity website](http://www.barthsyndrome.org.uk/) ## Frequently asked questions Is Barth Syndrome UK a legitimate charity? Yes. Barth Syndrome UK is a legitimate registered charity (charity number 1181830) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is Barth Syndrome UK's charity number? Barth Syndrome UK's charity number is 1181830. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1181830? Search 1181830 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Barth Syndrome UK do? Working throughout the UK, we assist families with Barth syndrome with support, information and access to expert care.We fund research into treatments and a cure. Does Barth Syndrome UK have reviews and complaints? CharityCompare does not host public user reviews for Barth Syndrome UK. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Barth Syndrome UK? Barth Syndrome UK's website is http://www.barthsyndrome.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1181830).