--- title: "Bardet-Biedl Syndrome UK (Bbs UK) — check charity number 1181244 | CharityCompare" description: "Is Bardet-Biedl Syndrome UK (Bbs UK) a legitimate UK charity? Check charity number 1181244. General Charitable Purposes charity based in Harwich. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare." source: https://www.charitycompare.org.uk/charity/bardet-biedl-syndrome-uk-bbs-uk retrieved: 2026-08-18T05:23:14.698Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer Bardet-Biedl Syndrome UK (Bbs UK) is a registered charity (number 1181244) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; the advancement of health or saving of lives; disability. Its latest reported income was £395,748 (year ending 2025-03-31). CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available. ## What are the key facts about Bardet-Biedl Syndrome UK (Bbs UK)? Registered charity number 1181244 Status Registered (active) Charity type CIO Location Harwich Latest income (year ending 2025-03-31) £395,748 Website [www.bbsuk.org.uk](http://www.bbsuk.org.uk/) ## What does Bardet-Biedl Syndrome UK (Bbs UK) do? BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources. ## What causes is Bardet-Biedl Syndrome UK (Bbs UK) registered for? General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability ## Why is there no Clarity Score for Bardet-Biedl Syndrome UK (Bbs UK) yet? The Clarity Score is computed from full financial filing history. Bardet-Biedl Syndrome UK (Bbs UK) is on the official register but outside the detailed-filing group we currently score (or awaiting its first filings), so we show its official register record instead of a rating. Its score appears automatically once enough filing data exists — never by payment. [How scoring works](https://www.charitycompare.org.uk/methodology) ## Is this your charity? Claim this profile free to add your own description, correct details, or respond publicly. Optional [partner plans](https://www.charitycompare.org.uk/partners) add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score. [Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=bardet-biedl-syndrome-uk-bbs-uk&type=claim) [Visit charity website](http://www.bbsuk.org.uk/) ## Frequently asked questions Is Bardet-Biedl Syndrome UK (Bbs UK) a legitimate charity? Yes. Bardet-Biedl Syndrome UK (Bbs UK) is a legitimate registered charity (charity number 1181244) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating. What is Bardet-Biedl Syndrome UK (Bbs UK)'s charity number? Bardet-Biedl Syndrome UK (Bbs UK)'s charity number is 1181244. Check that number on the Charity Commission register or this CharityCompare profile before you donate. How do I check charity number 1181244? Search 1181244 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers. What does Bardet-Biedl Syndrome UK (Bbs UK) do? BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources. Does Bardet-Biedl Syndrome UK (Bbs UK) have reviews and complaints? CharityCompare does not host public user reviews for Bardet-Biedl Syndrome UK (Bbs UK). This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate. How can I donate to Bardet-Biedl Syndrome UK (Bbs UK)? Bardet-Biedl Syndrome UK (Bbs UK)'s website is http://www.bbsuk.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations. Source: Charity Commission for England and Wales register extract dated 2026-07-31, used under the [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). Always verify current details on the [official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1181244).