---
title: "Alstrom Syndrome Europe — check charity number 1160362 | CharityCompare"
description: "Is Alstrom Syndrome Europe a legitimate UK charity? Check charity number 1160362. General Charitable Purposes charity based in Torquay. Official Charity Commission record, key facts and how to claim the profile — on CharityCompare."
source: https://www.charitycompare.org.uk/charity/alstrom-syndrome-europe
retrieved: 2026-08-18T19:07:29.415Z
license: "Charity data © Crown copyright, Open Government Licence v3.0"
---

Quick answer

Alstrom Syndrome Europe is a registered charity (number 1160362) on the Charity Commission for England and Wales register, so it is a legitimate, regulator-overseen organisation. It is registered for: general charitable purposes; the advancement of health or saving of lives; disability. CharityCompare shows its official register record below; a Clarity Score is added automatically once detailed filing history is available.

## What are the key facts about Alstrom Syndrome Europe?

Registered charity number

1160362

Status

Registered (active)

Charity type

Charitable company

Location

Torquay

Website

[www.alstrom.org.uk](http://www.alstrom.org.uk/)

## What does Alstrom Syndrome Europe do?

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

## What causes is Alstrom Syndrome Europe registered for?

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

## Why is there no Clarity Score for Alstrom Syndrome Europe yet?

The Clarity Score is computed from full financial filing history. Alstrom Syndrome Europe is on the official
register but outside the detailed-filing group we currently score (or awaiting its first filings), so
we show its official register record instead of a rating. Its score appears automatically once enough
filing data exists — never by payment.
[How scoring works](https://www.charitycompare.org.uk/methodology)

## Is this your charity?

Claim this profile free to add your own description, correct details, or respond publicly.
Optional [partner plans](https://www.charitycompare.org.uk/partners)
add your logo, photos, verified badge and supporter features — claiming itself is always free and never changes any score.

[Claim this profile — free](https://www.charitycompare.org.uk/claim?charity=alstrom-syndrome-europe&type=claim)
[Visit charity website](http://www.alstrom.org.uk/)

## Frequently asked questions

Is Alstrom Syndrome Europe a legitimate charity?

Yes. Alstrom Syndrome Europe is a legitimate registered charity (charity number 1160362) regulated by the Charity Commission for England and Wales. You can verify it on the official register. Registration proves status — it is not a Clarity Score or an impact rating.

What is Alstrom Syndrome Europe's charity number?

Alstrom Syndrome Europe's charity number is 1160362. Check that number on the Charity Commission register or this CharityCompare profile before you donate.

How do I check charity number 1160362?

Search 1160362 on the Charity Commission for England and Wales register or on CharityCompare. Confirm the registered name matches the organisation asking for money — scammers sometimes reuse real charity numbers.

What does Alstrom Syndrome Europe do?

Alstrom Syndrome Europe is a network of medical and scientific professionals from across the EU working to educate and share information and promote research into the many complex aspects of the ultra rare disease Alstrom Syndrome. The medical professionals work with affected patients in their respective countries and liaise with patient groups.

Does Alstrom Syndrome Europe have reviews and complaints?

CharityCompare does not host public user reviews for Alstrom Syndrome Europe. This basic profile confirms registration and register facts. Rated charities also show a filing-based Clarity Score. For formal complaints, contact the Charity Commission for England and Wales or the Fundraising Regulator as appropriate.

How can I donate to Alstrom Syndrome Europe?

Alstrom Syndrome Europe's website is http://www.alstrom.org.uk — donate there directly so the charity receives the full amount. CharityCompare never takes a commission on donations.

Source: Charity Commission for England and Wales register extract dated 2026-07-31,
used under the
[Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/).
Always verify current details on the
[official register entry](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1160362).