--- title: "Alex, The Leukodystrophy Charity rating | CharityCompare" description: "Is Alex, The Leukodystrophy Charity a legitimate UK charity? Clarity Score 72/100. Accounts 2025: income £1.1m · 30% on charitable activities. Reg 1106008." source: https://www.charitycompare.org.uk/charity/alex-the-leukodystrophy-charity retrieved: 2026-08-18T07:05:02.595Z license: "Charity data © Crown copyright, Open Government Licence v3.0" --- Quick answer ## Is Alex, The Leukodystrophy Charity a good charity? Alex, The Leukodystrophy Charity scores 72/100 (3 stars, Needs improvement) on CharityCompare's Clarity Score, calculated from its UK regulator filings. Its latest accounts year is 2025 (£1.1m total income, 30% of spending on charitable activities). This reflects financial transparency and stewardship on paper — not the real-world impact of its programmes. See the full breakdown. United Kingdom | Reg [1106008](https://www.charitycompare.org.uk/charity/alex-the-leukodystrophy-charity) | Registered charity | [Official website](https://www.alextlc.org/) | [Charity Commission register](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1106008) Donate ## How can you give to Alex, The Leukodystrophy Charity? You leave CharityCompare to complete a donation on the official Alex, The Leukodystrophy Charity form. We do not process payments or take commission. Opens their official online donation form. [Donate](https://www.alextlc.org/?utm_source=charitycompare&utm_medium=referral&utm_campaign=donate&utm_content=1106008) ## What does Alex, The Leukodystrophy Charity do? Alex, The Leukodystrophy Charity is a registered charity (no. 1106008) working in disability across the United Kingdom. Its latest Charity Commission filing directs 30% of spending to charitable activities, holding roughly 2 months of reserves, and files its annual accounts on time. Reported income has been growing (≈10% a year). CharityCompare's Clarity Score rates the organisation only from public Charity Commission accounts — accountability, financial health, efficiency and community support — not the quality or impact of its programmes. Summarised from public filings — Alex, The Leukodystrophy Charity hasn't added its own description yet. [Work here? Add it free →](https://www.charitycompare.org.uk/claim?charity=alex-the-leukodystrophy-charity) **In short:** Alex, The Leukodystrophy Charity scores 72 out of 100 (3 stars). 30% average program spend (3-year average). Review the pillar breakdown below. ## What is Alex, The Leukodystrophy Charity? Alex, The Leukodystrophy Charity has a Clarity Score of 72 out of 100 on CharityCompare (3 stars, Needs improvement). Charity Commission registration number 1106008. Status: Registered. Primary cause area: Disability. Latest accounts year 2025: total income £1.1m, with 30% of expenditure on charitable activities. Accounts filing: up to date. Reserves: approximately 2 months of operating costs. 1 filing concern(s) noted on this profile. Scores are independent and based on official filings — not a donation recommendation. Data from [Charity Commission register](https://register-of-charities.charitycommission.gov.uk/), last updated 17 July 2026. Overall score 72/100 3★ · Needs improvement Cause spend 30% 3-yr avg · charitable activities Accountability 100/100 Finance beacon Income £1.1m Latest year 2025 Reserves 2 mo Months of running costs Accounts filing On time Charity Commission £1.4 raised per £1 fundraising (3-yr avg) · 71% overhead · Website on register · Confidence: high ## How does Alex, The Leukodystrophy Charity compare? Clarity Score percentile against similar UK charities — the share of peers Alex, The Leukodystrophy Charity scores higher than. Income band (£1m–£5m)30thpercentile **Scores higher than 30% of 2,776 charities in its income band** · 72/100 vs 78 peer average (marker). Disability charities27thpercentile **Scores higher than 27% of 711 charities in this cause** · 72/100 vs 79 peer average (marker). ## How reliable is Alex, The Leukodystrophy Charity's data? Source Charity Commission (England & Wales) Accounts year 2025 Filing date 24 June 2026 Profile reviewed 17 July 2026 High confidence — complete filing data Scores reflect the latest annual accounts on the register. Clarity Score measures how clearly the charity accounts for money in those filings — not programme impact. Contains public sector information licensed under the Open Government Licence v3.0. Sources: [Charity Commission for England and Wales](https://register-of-charities.charitycommission.gov.uk/), [Office of the Scottish Charity Regulator](https://www.oscr.org.uk/) and [Charity Commission for Northern Ireland](https://www.charitycommissionni.org.uk/). [Open Government Licence v3.0](https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3/). ## What is Alex, The Leukodystrophy Charity's Beacon report? Detailed accountability and finance metrics from UK regulator filings — structured for transparency in our four-beacon report. ### Accountability & Transparency Baseline trust from filing discipline, board oversight, and declared governance policies. 100/100 | Metric | Score | Value | | --- | --- | --- | | Filing history (5 years) 100% on-time over five years = 15 pts · one late filing = 5 pts · two or more = 0 pts. | 100% | 15/15 pts | | Trustee oversight Three or more trustees on the register = 15 pts, scaled down for fewer (governance red flag below three). | 100% | 11 trustees · 15/15 pts | | Declared policies Safeguarding (4) · conflict of interest (3) · volunteer management (3) — from Charity Commission annual return. | 100% | 10/10 pts | ### Financial Health Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts. 73/100 | Metric | Score | Value | | --- | --- | --- | | Reserves (months of cash) 3–24 months = full marks, tapering on both sides · 0 months or 4+ years (hoarding) = 0 pts. | 67% | 2 months · 10/15 pts | | Income stability / growth +20% or more over the window = 10 pts · flat = 5 pts · −20% or worse = 0 pts, scaled between. | 80% | 8/10 pts · 3-year average | | Liabilities to assets 0% liabilities-to-assets = 5 pts, scaling down to 0 pts at 60%+ debt. | 80% | 17% · 4/5 pts | ### Financial Efficiency How efficiently funds reach the cause — program spend and fundraising cost ratios. 0/100 | Metric | Score | Value | | --- | --- | --- | | Program expense ratio 90%+ on charitable activities = full marks, scaling down to 0 pts at 50% or below. | 0% | 30% · 0/10 pts (3-year average) | | Fundraising efficiency ≤10p to raise £1 = full marks, scaling down to 0 pts at 40p or above (fundraising cost ÷ income). | 0% | 70p per £1 income · 0/10 pts (3-year average) | ### Community Support Grassroots backing from Charity Commission workforce data — volunteers vs paid staff. 100/100 | Metric | Score | Value | | --- | --- | --- | | Volunteer-to-staff ratio Volunteers at 2x staff or more = full marks · no volunteers = 0 pts, scaled between. | 100% | 55 volunteers / 27 staff · 10/10 pts | [How we calculate beacon scores →](https://www.charitycompare.org.uk/methodology) ## What is Alex, The Leukodystrophy Charity's Clarity Score? 72/100 total · Needs improvement · 3 of 5 stars Four pillars (40 + 30 + 20 + 10 points) from Charity Commission filings — see methodology for full weightings. 100/100 Accountability & Transparency 73/100 Financial Health 0/100 Financial Efficiency 100/100 Community Support ### Accountability & Transparency Baseline trust from filing discipline, board oversight, and declared governance policies. 100/100 Filing history (5 years)15/15 pts Trustee oversight11 trustees · 15/15 pts Declared policies10/10 pts ### Financial Health Stability and solvency — reserves, revenue trend, and debt from Charity Commission accounts. 73/100 Reserves (months of cash)2 months · 10/15 pts Income stability / growth8/10 pts · 3-year average Liabilities to assets17% · 4/5 pts ### Financial Efficiency How efficiently funds reach the cause — program spend and fundraising cost ratios. 0/100 Program expense ratio30% · 0/10 pts (3-year average) Fundraising efficiency70p per £1 income · 0/10 pts (3-year average) ### Community Support Grassroots backing from Charity Commission workforce data — volunteers vs paid staff. 100/100 Volunteer-to-staff ratio55 volunteers / 27 staff · 10/10 pts ## How much does Alex, The Leukodystrophy Charity raise and spend? Latest filed year 2025 · Source: Charity Commission filings | Category | Amount | % of spend | | --- | --- | --- | | Total income | £1.1m | — | | Total expenditure | £1.0m | — | | Charitable activities | £302k | 29% | | Fundraising | £724k | 71% | | Governance & admin | £13k | 1% | 29%On charitable activities ## Where does the money go? Latest accounts (2025) · £1.0m spent - Charitable activities29% · £302k - Fundraising71% · £724k - Governance1% · £13k ## What trust indicators does Alex, The Leukodystrophy Charity have? Pulled from the Charity Commission register — filing behaviour, board size, and workforce where reported. - ✓ Accounts filed on time up to date · last filing 24 June 2026 - ✓ Trustee board size (3–12) 11 trustees on the Charity Commission register - ✓ Workforce on register 27 employees · 55 volunteers (2:1 volunteer-to-staff) Fundraising Regulator Status not yet checked Separate from our financial scores — shows whether the charity follows the Code of Fundraising Practice. [Check Fundraising Regulator →](https://www.fundraisingregulator.org.uk/members/) Official register Reg 1106008 Full trustee list, accounts, and regulatory history on the Charity Commission. [View on Charity Commission →](https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1106008) ### Trustees & officers - LINDA CHRISTINE MILNE since 2015 - Iraj Idafar since 2022 - Emma Jane Hadfield-Hudson since 2023 - Tulsi Sandys-Winsch since 2023 - Gil Sarig since 2024 - Nick James Leopold Shiroi since 2024 - Thomas Dalton since 2024 - Siriana Baldini Chair · since 2024 - Dr Rahul Raman Singh since 2025 - Sharon Horth since 2026 - Sophia Walker since 2026 100 How we score charities +The Clarity Score is a 100-point rating from UK regulator filings (Charity Commission for England and Wales, OSCR and CCNI). Four pillars — Accountability & Transparency (40), Financial Health (30), Financial Efficiency (20), and Community Support (10) — each scored on a continuous scale, not pass/fail cutoffs. A statutory inquiry sets the score to 0 automatically. [Full methodology →](https://www.charitycompare.org.uk/methodology) Accountability & Transparency Scored from filings 40 points — filing history (15), trustee oversight (15, scaling up to a board of three or more), declared policies (10). Financial Health Scored from filings 30 points — reserves (15, full marks 3–24 months, tapering on both sides), income stability (10), liabilities to assets (5, scaling down as debt rises). Financial Efficiency Scored from filings 20 points — program expense ratio and fundraising cost, each on a graduated scale (not a single cutoff). Kept at 20% of the total: financial-ratio scoring alone is not a reliable effectiveness signal (see "why not just an overhead ratio?" below). Community Support Scored from filings 10 points — volunteer-to-staff ratio from Charity Commission workforce data, scaling continuously up to a 2:1 ratio. Overall score Sum of all pillar points. Display stars use the same bands as the labels: 90–100 → 5★ Exceptional; 75–89 → 4★ Good; 60–74 → 3★ Needs improvement; 1–59 → 2★ Poor; 0 → not rated. ## How have Alex, The Leukodystrophy Charity's finances changed over five years? - Income - Spending - Cause spend Values in £ thousands · Cause spend plotted only when the filing discloses a split · Source: Charity Commission accounts ## What are the key facts about Alex, The Leukodystrophy Charity? Overall score 72/100 (3★) Income £1.1m Cause spend 30% of expenditure Reg number 1106008 Scope UK-wide Reserves 2 months Trustees 11 Accounts year 2025 Filing up to date ## How does Alex, The Leukodystrophy Charity compare, and where else can you look? [Compare Alex, The Leukodystrophy Charity with others](https://www.charitycompare.org.uk/compare-charities?ids=alex-the-leukodystrophy-charity) [More disability charities](https://www.charitycompare.org.uk/browse/disability) [How we score charities](https://www.charitycompare.org.uk/methodology) ### Where Alex, The Leukodystrophy Charity sits The causes this charity is classified under, and other charities working nearby. - [disability charities](https://www.charitycompare.org.uk/browse/disability) - [health charities](https://www.charitycompare.org.uk/browse/health) - [education charities](https://www.charitycompare.org.uk/browse/education) - [children charities](https://www.charitycompare.org.uk/browse/children) ### Similar disability charities Top-rated peers by CharityCompare score - [POLKA CHILDREN'S THEATRE LIMITED](https://www.charitycompare.org.uk/charity/polka-children-s-theatre-limited) 100/100 · £3.6m - [TREWEN MEADOWS](https://www.charitycompare.org.uk/charity/trewen-meadows) 100/100 · £1.4m - [CAMBRIDGE RAPE CRISIS CENTRE](https://www.charitycompare.org.uk/charity/cambridge-rape-crisis-centre) 100/100 · £916k - [Kent Neuro Therapy Centre Limited](https://www.charitycompare.org.uk/charity/kent-neuro-therapy-centre-limited) 100/100 · £858k ## How can you share Alex, The Leukodystrophy Charity's rating? 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Free to use — a lightweight HTML badge or an embeddable score widget, each linking back to this independent profile and our [methodology](https://www.charitycompare.org.uk/methodology). BadgeScore widget [♥ CharityCompare Clarity Score 72/100 ★★★★★](https://www.charitycompare.org.uk/charity/alex-the-leukodystrophy-charity) Lightweight HTML badge (no iframe) — paste anywhere ♥ CharityCompare Clarity Score 72/100 ★★★★★ Copy code ## What red flags does Alex, The Leukodystrophy Charity have? ## Frequently asked questions Common questions about Alex, The Leukodystrophy Charity's rating, finances, and Charity Commission status. Is Alex, The Leukodystrophy Charity a good charity? + Alex, The Leukodystrophy Charity scores 72 out of 100 (3 stars — Needs improvement) on CharityCompare's Clarity Score, our independent read of its UK regulator filings. Around 30% of its spending goes to charitable activities and its accounts are up to date. That reflects how transparent and financially healthy it looks on paper — it does not measure the real-world impact of its work, so treat it as one factor alongside the cause you care about. CharityCompare never tells you where to donate. Is Alex, The Leukodystrophy Charity a legitimate charity? + Yes — Alex, The Leukodystrophy Charity is a legitimate registered charity (charity number 1106008). Verify it on the official register: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/1106008. Registration proves status; Clarity Score then summarises filing transparency on paper, not programme impact. What is Alex, The Leukodystrophy Charity's charity number? + Alex, The Leukodystrophy Charity's charity number is 1106008. Check that number on the official register (Charity Commission, OSCR or CCNI) or this CharityCompare profile before you donate — scammers sometimes reuse real numbers on fake appeals. What is Alex, The Leukodystrophy Charity's charity rating? + Alex, The Leukodystrophy Charity scores 72 out of 100 on CharityCompare (3 stars — Needs improvement). The Clarity Score V1 sums four pillars from UK regulator filings: Accountability & Transparency (40 pts), Financial Health (30), Financial Efficiency (20), and Community Support (10). Stars use the same bands as those labels — 90+ is 5★ Exceptional. It is not an impact ranking. Does Alex, The Leukodystrophy Charity have reviews and complaints? + CharityCompare does not host public user reviews for Alex, The Leukodystrophy Charity. Instead you get a filing-based Clarity Score, cause spend, reserves and red flags such as late accounts (1 filing concern(s) noted on this profile). For formal complaints about a charity, contact the Charity Commission, OSCR, CCNI or the Fundraising Regulator as appropriate. How much of my donation reaches Alex, The Leukodystrophy Charity? + According to its 2025 regulator filing, 30% of Alex, The Leukodystrophy Charity's total spending went to charitable activities (3-yr avg across disclosed years). That is the closest official figure to "how much of your donation reaches the cause" — it is an average across all spending in the filing, not a pound-by-pound breakdown of an individual gift. What are Alex, The Leukodystrophy Charity's overheads? + According to its 2025 regulator filing, fundraising costs were about 70% of total expenditure and combined overheads (fundraising plus governance) were about 71% of total expenditure at Alex, The Leukodystrophy Charity. The filings CharityCompare uses do not publish CEO or senior-staff pay, so we cannot say what Alex, The Leukodystrophy Charity's chief executive is paid — where disclosure rules apply, senior pay appears in the trustees' annual report on the Charity Commission register. How much income does Alex, The Leukodystrophy Charity receive? + Alex, The Leukodystrophy Charity reported £1.1m total income in its 2025 accounts, based on UK regulator filings. Five-year trend: growing. Are Alex, The Leukodystrophy Charity's accounts up to date? + Filing status: up to date (last filing 2026-06-24). CharityCompare flags late or missing accounts separately from the financial score. Where is Alex, The Leukodystrophy Charity based? + Alex, The Leukodystrophy Charity is listed at United Kingdom and operates UK-wide, focused on disability. How does CharityCompare score Alex, The Leukodystrophy Charity? + We calculate a Clarity Score of 0–100 from four pillars in Alex, The Leukodystrophy Charity's regulator filings: Accountability & Transparency (40 points — filing history, trustees, policies), Financial Health (30 — reserves, income trend, debt), Financial Efficiency (20 — cause spend and fundraising cost, on a graduated scale) and Community Support (10 — volunteer-to-staff ratio). An open statutory inquiry scores 0. The score measures reporting on paper, not programme impact. CharityCompare is free for donors, takes no commission on donations, and scores cannot be bought. How often is this page updated? + This profile was last updated on 17 July 2026 from the latest UK regulator data available to CharityCompare, and Alex, The Leukodystrophy Charity's most recent accounts cover 2025. Scores and figures refresh whenever we re-ingest the register, so the page reflects our latest data pull rather than a one-off review.